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Employer Identification Number 13-1930701

CYSTIC FIBROSIS FOUNDATION is a USA domiciled entity or foreign entity operating in the USA. The EIN ihas been issued by the IRS

Company Name:CYSTIC FIBROSIS FOUNDATION
Employer identification number (EIN):13-1930701
EIN Issuing AuthorityBrookhaven, NY
NAIC Classification:813000
NAIC Description: Religious, Grantmaking, Civic, Professional, and Similar Organizations
401k Pension/Benefits registration CYSTIC FIBROSIS FOUNDATION 401k plan information
Federal tax statusExempt from federal income tax. Registered as a non-profit under 501(c)(3) Title 26 of the United States Code
State of IncorporationDelaware, DE

Organization Overview

Mission StatementTHE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES.
Number of Employees760
Number of Volunteers92000
Year Formed1955

Organization Governance

Legal DomicileDE
Voting Members - Governing Body17
Voting Members - Independent16

Organization Financials

2023-12-31
Total unrelated business incomeUSD $ 8,541,916
Net unrelated business incomeUSD $ 1,930,665
Program Service Revenue from prior yearUSD $ 2,555,705
Program Service Revenue from current yearUSD $ 3,437,695
Investment Income from prior yearUSD $ 128,066,687
Investment Income from current yearUSD $ 179,149,610
Other Revenue from prior yearUSD $ 20,059,002
Other Revenue from current yearUSD $ 22,821,602
Gross receipts from all sourcesUSD $ 1,810,280,197
Net assets / fund balances at end of fiscal yearUSD $ 4,592,956,300
Net assets / fund balances at beginning of fiscal yearUSD $ 4,443,719,016
Total liabilities at end of fiscal yearUSD $ 292,964,822
Total liabilities at beginning of fiscal yearUSD $ 291,339,976
Total assets at end of fiscal yearUSD $ 4,885,921,122
Total assets at beginning of fiscal yearUSD $ 4,735,058,992
Revenues less expenses for current yearUSD $ -151,388,319
Revenues less expenses for previous yearUSD $ -148,033,762
Total expenses for current yearUSD $ 443,404,599
Total expenses for previous yearUSD $ 396,664,114
Other expenses in current yearUSD $ 114,819,495
Other expenses in previous yearUSD $ 95,625,710
Total fundraising expenses in current yearUSD $ 32,375,523
Professional fundraising fees from current yearUSD $ 176,400
Professional fundraising fees from previous yearUSD $ 176,400
Employee salary and benefits paid in current yearUSD $ 127,953,243
Employee salary and benefits paid in previous yearUSD $ 116,829,042
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 200,455,461
Grants and similar amounts paid in previous yearUSD $ 184,032,962
Total revenue in current fiscal yearUSD $ 292,016,280
Total revenue in previous fiscal yearUSD $ 248,630,352
Contributions and grants from current yearUSD $ 86,607,373
Contributions and grants from previous yearUSD $ 97,948,958
Gross income from fundraising eventsUSD $ 14,594,252
Gross income from gamingUSD $ 21,710
Total of other revenueUSD $ 10,265,778
2022-12-31
Total unrelated business incomeUSD $ 7,323,291
Net unrelated business incomeUSD $ 1,108,726
Program Service Revenue from prior yearUSD $ 1,263,333
Program Service Revenue from current yearUSD $ 2,555,705
Investment Income from prior yearUSD $ 306,161,908
Investment Income from current yearUSD $ 128,066,687
Other Revenue from prior yearUSD $ 23,276,151
Other Revenue from current yearUSD $ 20,059,002
Gross receipts from all sourcesUSD $ 1,350,372,542
Net assets / fund balances at end of fiscal yearUSD $ 4,443,719,016
Net assets / fund balances at beginning of fiscal yearUSD $ 5,416,630,309
Total liabilities at end of fiscal yearUSD $ 291,339,976
Total liabilities at beginning of fiscal yearUSD $ 274,479,667
Total assets at end of fiscal yearUSD $ 4,735,058,992
Total assets at beginning of fiscal yearUSD $ 5,691,109,976
Revenues less expenses for current yearUSD $ -148,033,762
Revenues less expenses for previous yearUSD $ 41,626,365
Total expenses for current yearUSD $ 396,664,114
Total expenses for previous yearUSD $ 375,611,186
Other expenses in current yearUSD $ 95,625,710
Other expenses in previous yearUSD $ 89,426,030
Total fundraising expenses in current yearUSD $ 30,435,741
Professional fundraising fees from current yearUSD $ 176,400
Professional fundraising fees from previous yearUSD $ 176,400
Employee salary and benefits paid in current yearUSD $ 116,829,042
Employee salary and benefits paid in previous yearUSD $ 107,679,100
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 184,032,962
Grants and similar amounts paid in previous yearUSD $ 178,329,656
Total revenue in current fiscal yearUSD $ 248,630,352
Total revenue in previous fiscal yearUSD $ 417,237,551
Contributions and grants from current yearUSD $ 97,948,958
Contributions and grants from previous yearUSD $ 86,536,159
Gross income from fundraising eventsUSD $ 12,338,183
Gross income from gamingUSD $ 106,070
Total of other revenueUSD $ 6,002,985
2021-12-31
Total unrelated business incomeUSD $ -1,752,749
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 1,666,083
Program Service Revenue from current yearUSD $ 1,263,333
Investment Income from prior yearUSD $ 681,199,107
Investment Income from current yearUSD $ 306,161,908
Other Revenue from prior yearUSD $ 44,565,408
Other Revenue from current yearUSD $ 23,276,151
Gross receipts from all sourcesUSD $ 1,964,297,033
Net assets / fund balances at end of fiscal yearUSD $ 5,416,630,309
Net assets / fund balances at beginning of fiscal yearUSD $ 5,098,993,014
Total liabilities at end of fiscal yearUSD $ 274,479,667
Total liabilities at beginning of fiscal yearUSD $ 271,006,647
Total assets at end of fiscal yearUSD $ 5,691,109,976
Total assets at beginning of fiscal yearUSD $ 5,369,999,661
Revenues less expenses for current yearUSD $ 41,626,365
Revenues less expenses for previous yearUSD $ 419,248,962
Total expenses for current yearUSD $ 375,611,186
Total expenses for previous yearUSD $ 381,380,991
Other expenses in current yearUSD $ 89,426,030
Other expenses in previous yearUSD $ 90,918,826
Total fundraising expenses in current yearUSD $ 20,846,911
Professional fundraising fees from current yearUSD $ 176,400
Professional fundraising fees from previous yearUSD $ 179,250
Employee salary and benefits paid in current yearUSD $ 107,679,100
Employee salary and benefits paid in previous yearUSD $ 103,110,573
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 178,329,656
Grants and similar amounts paid in previous yearUSD $ 187,172,342
Total revenue in current fiscal yearUSD $ 417,237,551
Total revenue in previous fiscal yearUSD $ 800,629,953
Contributions and grants from current yearUSD $ 86,536,159
Contributions and grants from previous yearUSD $ 73,199,355
Gross income from fundraising eventsUSD $ 3,443,701
Gross income from gamingUSD $ 14,800
Total of other revenueUSD $ 10,802,698
2020-12-31
Total unrelated business incomeUSD $ 598,348
Net unrelated business incomeUSD $ 174,139
Program Service Revenue from prior yearUSD $ 4,147,243
Program Service Revenue from current yearUSD $ 1,666,083
Investment Income from prior yearUSD $ 441,790,325
Investment Income from current yearUSD $ 681,199,107
Other Revenue from prior yearUSD $ 50,945,967
Other Revenue from current yearUSD $ 44,565,408
Gross receipts from all sourcesUSD $ 2,292,513,166
Net assets / fund balances at end of fiscal yearUSD $ 5,098,993,014
Net assets / fund balances at beginning of fiscal yearUSD $ 4,236,708,832
Total liabilities at end of fiscal yearUSD $ 271,006,647
Total liabilities at beginning of fiscal yearUSD $ 239,802,250
Total assets at end of fiscal yearUSD $ 5,369,999,661
Total assets at beginning of fiscal yearUSD $ 4,476,511,082
Revenues less expenses for current yearUSD $ 419,248,962
Revenues less expenses for previous yearUSD $ 257,128,326
Total expenses for current yearUSD $ 381,380,991
Total expenses for previous yearUSD $ 348,650,099
Other expenses in current yearUSD $ 90,918,826
Other expenses in previous yearUSD $ 93,608,605
Total fundraising expenses in current yearUSD $ 21,579,522
Professional fundraising fees from current yearUSD $ 179,250
Professional fundraising fees from previous yearUSD $ 323,686
Employee salary and benefits paid in current yearUSD $ 103,110,573
Employee salary and benefits paid in previous yearUSD $ 99,469,166
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 187,172,342
Grants and similar amounts paid in previous yearUSD $ 155,248,642
Total revenue in current fiscal yearUSD $ 800,629,953
Total revenue in previous fiscal yearUSD $ 605,778,425
Contributions and grants from current yearUSD $ 73,199,355
Contributions and grants from previous yearUSD $ 108,894,890
Gross income from fundraising eventsUSD $ 3,754,416
Gross income from gamingUSD $ 89,000
Total of other revenueUSD $ 12,433,089
2019-12-31
Total unrelated business incomeUSD $ -4,139,609
Net unrelated business incomeUSD $ -4,173,957
Program Service Revenue from prior yearUSD $ 4,441,092
Program Service Revenue from current yearUSD $ 4,147,243
Investment Income from prior yearUSD $ 141,144,690
Investment Income from current yearUSD $ 441,790,325
Other Revenue from prior yearUSD $ 22,146,383
Other Revenue from current yearUSD $ 50,945,967
Gross receipts from all sourcesUSD $ 4,557,943,659
Net assets / fund balances at end of fiscal yearUSD $ 4,236,708,832
Net assets / fund balances at beginning of fiscal yearUSD $ 3,775,363,472
Total liabilities at end of fiscal yearUSD $ 239,802,250
Total liabilities at beginning of fiscal yearUSD $ 238,572,484
Total assets at end of fiscal yearUSD $ 4,476,511,082
Total assets at beginning of fiscal yearUSD $ 4,013,935,956
Revenues less expenses for current yearUSD $ 257,128,326
Revenues less expenses for previous yearUSD $ -62,121,812
Total expenses for current yearUSD $ 348,650,099
Total expenses for previous yearUSD $ 337,912,568
Other expenses in current yearUSD $ 93,608,605
Other expenses in previous yearUSD $ 103,083,764
Total fundraising expenses in current yearUSD $ 28,709,961
Professional fundraising fees from current yearUSD $ 323,686
Professional fundraising fees from previous yearUSD $ 326,000
Employee salary and benefits paid in current yearUSD $ 99,469,166
Employee salary and benefits paid in previous yearUSD $ 90,187,520
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 155,248,642
Grants and similar amounts paid in previous yearUSD $ 144,315,284
Total revenue in current fiscal yearUSD $ 605,778,425
Total revenue in previous fiscal yearUSD $ 275,790,756
Contributions and grants from current yearUSD $ 108,894,890
Contributions and grants from previous yearUSD $ 108,058,591
Gross income from fundraising eventsUSD $ 15,811,603
Cost of goods soldUSD $ 0
Gross income from gamingUSD $ 135,192
Gross sales of inventory assetsUSD $ 0
Total of other revenueUSD $ 6,283,837
2018-12-31
Total unrelated business incomeUSD $ -4,072,385
Net unrelated business incomeUSD $ -3,775,530
Program Service Revenue from prior yearUSD $ 3,971,424
Program Service Revenue from current yearUSD $ 4,441,092
Investment Income from prior yearUSD $ 149,520,920
Investment Income from current yearUSD $ 141,144,690
Other Revenue from prior yearUSD $ 11,339,404
Other Revenue from current yearUSD $ 22,146,383
Gross receipts from all sourcesUSD $ 1,657,392,138
Net assets / fund balances at end of fiscal yearUSD $ 3,775,363,472
Net assets / fund balances at beginning of fiscal yearUSD $ 4,194,186,065
Total liabilities at end of fiscal yearUSD $ 238,572,484
Total liabilities at beginning of fiscal yearUSD $ 206,891,793
Total assets at end of fiscal yearUSD $ 4,013,935,956
Total assets at beginning of fiscal yearUSD $ 4,401,077,858
Revenues less expenses for current yearUSD $ -62,121,812
Revenues less expenses for previous yearUSD $ -17,284,669
Total expenses for current yearUSD $ 337,912,568
Total expenses for previous yearUSD $ 292,766,690
Other expenses in current yearUSD $ 103,083,764
Other expenses in previous yearUSD $ 44,528,505
Total fundraising expenses in current yearUSD $ 26,896,581
Professional fundraising fees from current yearUSD $ 326,000
Professional fundraising fees from previous yearUSD $ 288,543
Employee salary and benefits paid in current yearUSD $ 90,187,520
Employee salary and benefits paid in previous yearUSD $ 68,025,837
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 144,315,284
Grants and similar amounts paid in previous yearUSD $ 179,923,805
Total revenue in current fiscal yearUSD $ 275,790,756
Total revenue in previous fiscal yearUSD $ 275,482,021
Contributions and grants from current yearUSD $ 108,058,591
Contributions and grants from previous yearUSD $ 110,650,273
Gross income from fundraising eventsUSD $ 14,774,450
Cost of goods soldUSD $ 0
Gross income from gamingUSD $ 128,250
Gross sales of inventory assetsUSD $ 0
Total of other revenueUSD $ 5,306,539
2017-12-31
Total unrelated business incomeUSD $ -1,415,836
Net unrelated business incomeUSD $ -1,532,275
Program Service Revenue from prior yearUSD $ 2,246,282
Program Service Revenue from current yearUSD $ 3,971,424
Investment Income from prior yearUSD $ 64,555,425
Investment Income from current yearUSD $ 149,520,920
Other Revenue from prior yearUSD $ 8,578,517
Other Revenue from current yearUSD $ 11,339,404
Gross receipts from all sourcesUSD $ 1,393,954,611
Net assets / fund balances at end of fiscal yearUSD $ 4,194,186,065
Net assets / fund balances at beginning of fiscal yearUSD $ 3,732,155,178
Total liabilities at end of fiscal yearUSD $ 206,891,793
Total liabilities at beginning of fiscal yearUSD $ 187,239,749
Total assets at end of fiscal yearUSD $ 4,401,077,858
Total assets at beginning of fiscal yearUSD $ 3,919,394,927
Revenues less expenses for current yearUSD $ -17,284,669
Revenues less expenses for previous yearUSD $ -107,121,556
Total expenses for current yearUSD $ 292,766,690
Total expenses for previous yearUSD $ 299,650,531
Other expenses in current yearUSD $ 44,528,505
Other expenses in previous yearUSD $ 42,514,066
Total fundraising expenses in current yearUSD $ 24,702,883
Professional fundraising fees from current yearUSD $ 288,543
Professional fundraising fees from previous yearUSD $ 133,446
Employee salary and benefits paid in current yearUSD $ 68,025,837
Employee salary and benefits paid in previous yearUSD $ 58,875,323
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 179,923,805
Grants and similar amounts paid in previous yearUSD $ 198,127,696
Total revenue in current fiscal yearUSD $ 275,482,021
Total revenue in previous fiscal yearUSD $ 192,528,975
Contributions and grants from current yearUSD $ 110,650,273
Contributions and grants from previous yearUSD $ 117,148,751
Gross income from fundraising eventsUSD $ 14,552,162
Cost of goods soldUSD $ 0
Gross income from gamingUSD $ 152,043
Gross sales of inventory assetsUSD $ 0
Total of other revenueUSD $ 1,647,393
2016-12-31
Total unrelated business incomeUSD $ -545,558
Net unrelated business incomeUSD $ -601,675
Program Service Revenue from prior yearUSD $ 2,216,198
Program Service Revenue from current yearUSD $ 2,246,282
Investment Income from prior yearUSD $ 41,305,390
Investment Income from current yearUSD $ 64,555,425
Other Revenue from prior yearUSD $ 9,029,211
Other Revenue from current yearUSD $ 8,578,517
Gross receipts from all sourcesUSD $ 1,123,791,107
Net assets / fund balances at end of fiscal yearUSD $ 3,732,155,178
Net assets / fund balances at beginning of fiscal yearUSD $ 3,679,424,528
Total liabilities at end of fiscal yearUSD $ 187,239,749
Total liabilities at beginning of fiscal yearUSD $ 124,060,775
Total assets at end of fiscal yearUSD $ 3,919,394,927
Total assets at beginning of fiscal yearUSD $ 3,803,485,303
Revenues less expenses for current yearUSD $ -107,121,556
Revenues less expenses for previous yearUSD $ -44,527,665
Total expenses for current yearUSD $ 299,650,531
Total expenses for previous yearUSD $ 192,986,761
Other expenses in current yearUSD $ 42,514,066
Other expenses in previous yearUSD $ 27,943,551
Total fundraising expenses in current yearUSD $ 22,784,588
Professional fundraising fees from current yearUSD $ 133,446
Professional fundraising fees from previous yearUSD $ 192,000
Employee salary and benefits paid in current yearUSD $ 58,875,323
Employee salary and benefits paid in previous yearUSD $ 32,239,198
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 198,127,696
Grants and similar amounts paid in previous yearUSD $ 132,612,012
Total revenue in current fiscal yearUSD $ 192,528,975
Total revenue in previous fiscal yearUSD $ 148,459,096
Contributions and grants from current yearUSD $ 117,148,751
Contributions and grants from previous yearUSD $ 95,908,297
Gross income from fundraising eventsUSD $ 13,706,145
Cost of goods soldUSD $ 0
Gross income from gamingUSD $ 229,051
Gross sales of inventory assetsUSD $ 0
Total of other revenueUSD $ 444,386
2015-12-31
Total unrelated business incomeUSD $ -1,476
Net unrelated business incomeUSD $ -9,131
Program Service Revenue from prior yearUSD $ 2,155,742
Program Service Revenue from current yearUSD $ 2,216,198
Investment Income from prior yearUSD $ 55,016,588
Investment Income from current yearUSD $ 41,305,390
Other Revenue from prior yearUSD $ 6,708,116
Other Revenue from current yearUSD $ 9,029,211
Gross receipts from all sourcesUSD $ 2,726,701,281
Net assets / fund balances at end of fiscal yearUSD $ 3,679,424,528
Net assets / fund balances at beginning of fiscal yearUSD $ 3,814,362,946
Total liabilities at end of fiscal yearUSD $ 124,060,775
Total liabilities at beginning of fiscal yearUSD $ 108,325,747
Total assets at end of fiscal yearUSD $ 3,803,485,303
Total assets at beginning of fiscal yearUSD $ 3,922,688,693
Revenues less expenses for current yearUSD $ -44,527,665
Revenues less expenses for previous yearUSD $ 3,268,991,622
Total expenses for current yearUSD $ 192,986,761
Total expenses for previous yearUSD $ 80,021,438
Other expenses in current yearUSD $ 27,943,551
Other expenses in previous yearUSD $ 20,975,426
Total fundraising expenses in current yearUSD $ 9,120,691
Professional fundraising fees from current yearUSD $ 192,000
Professional fundraising fees from previous yearUSD $ 192,000
Employee salary and benefits paid in current yearUSD $ 32,239,198
Employee salary and benefits paid in previous yearUSD $ 25,951,581
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 132,612,012
Grants and similar amounts paid in previous yearUSD $ 32,902,431
Total revenue in current fiscal yearUSD $ 148,459,096
Total revenue in previous fiscal yearUSD $ 3,349,013,060
Contributions and grants from current yearUSD $ 95,908,297
Contributions and grants from previous yearUSD $ 3,285,132,614
Total of other revenueUSD $ 1,798,348

Other Company Names associated with EIN

CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS

Organization Addresses

The following addresses have been detected as associated with Tax Indentification Number 131930701

USA Mailing Address
6931 ARLINGTON ROAD
BETHESDA
MD
20814
Date first seen: 2008-01-01
Date last seen: 2025-08-31
USA Location Address
6931 ARLINGTON ROAD
BETHESDA
MD
20814
Date first seen: 2008-01-01
Date last seen: 2025-08-31
USA Mailing Address
6931 ARLINGTON RD
BETHESDA
MD
208145231
Date first seen: 2016-10-31
Date last seen: 2016-10-31
USA Location Address
6931 ARLINGTON RD
BETHESDA
MD
208145231
Date first seen: 2016-10-31
Date last seen: 2016-10-31
USA Mailing Address
4550 MONTGOMERY AVE STE 11N
BETHESDA
MD
208143304
Date first seen: 2017-10-30
Date last seen: 2018-10-15
USA Location Address
4550 MONTGOMERY AVE STE 11N
BETHESDA
MD
208143304
Date first seen: 2017-10-30
Date last seen: 2018-10-15
USA Mailing Address
PO BOX 1668
Wilsonville
OR
970701668
Date first seen: 2014-01-01
Date last seen: 2014-12-31
USA Mailing Address
4550 MONTGOMERY AVENUE
SUITE # 1100N
BETHESDA
MD
20814
Date first seen: 2008-01-01
Date last seen: 2025-12-04
USA Mailing Address
4550 MONTGOMERY AVE
SUITE 1100N
BETHESDA
MD
20814
Date first seen: 2008-01-01
Date last seen: 2025-11-22

The following addresses have been found in other jurisdictions:

Jurisdiction:Alaska Department Commerce, Community & Economic Development
Address:
9360 Glacier Hwy Ste 202
Juneau
99801
Jurisdiction Company ID:92644
Jurisdiction Registration Date:2005-03-08
Jurisdiction:Virginia State Corporation Commission
Address:
Bank of America Center, 16th Floor
1111 East Main Street
RICHMOND
VA
23219
Jurisdiction Company ID:F016023
Jurisdiction Registration Date:1983-08-29
Jurisdiction:Washington Department of State
Address:
CORPORATION SERVICE COMPANY
300 DESCHUTES WAY SW STE 304
TUMWATER
WA
985010000
Jurisdiction Company ID:601141577
Jurisdiction Registration Date:1965-04-15
Jurisdiction:New York Department of State
Address:
80 STATE STREET
ALBANY
12207
Jurisdiction Company ID:2162131
Jurisdiction Registration Date:1960-06-03
Jurisdiction:Wyoming Corporations Division
Address:
6931 Arlington Rd Ste 200
Bethesda
MD
20814
Jurisdiction Company ID:1980-000128452
Jurisdiction Registration Date:1975-01-10
Jurisdiction:Florida Department of State Division of Corporations
Address:
UNITED STATES CORPORATION COMPANY
1201 HAYS ST
TALLAHASSEE
FL
32301
Jurisdiction Company ID:813457
Jurisdiction Registration Date:1974-10-30
Jurisdiction:Vermont Secretary of State Corporations Division
Address:
UNITED STATES CORPORATION COMPANY
100 NORTH MAIN STREET
SUITE 2
BARRE
05641
Jurisdiction Company ID:46744 / N05025
Jurisdiction Registration Date:1985-01-08

EIN Events

Event Date Event description
2014-12-31Form 990-N declaration of Gross Receipts Under $25,000 in tax year 2014

Nearby companies/organizations

The following companies are located in the same ZIP code areas:

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