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Employer Identification Number 27-0950477

INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH is a USA domiciled entity or foreign entity operating in the USA. The EIN ihas been issued by the IRS

Company Name:INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH
Employer identification number (EIN):27-0950477
EIN Issuing AuthorityInternet
Federal tax statusExempt from federal income tax. Registered as a non-profit under 501(c)(3) Title 26 of the United States Code
State of IncorporationOhio, OH

Organization Overview

Mission StatementTo fund research aimed at finding a cure for CDKL5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from CDKL5.
Number of Employees0
Number of Volunteers12
Year Formed2009

Organization Governance

Legal DomicileOH
Voting Members - Governing Body8
Voting Members - Independent8

Organization Financials

2024-12-31
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from current yearUSD $ 0
Investment Income from prior yearUSD $ 3,044
Investment Income from current yearUSD $ 3,677
Other Revenue from prior yearUSD $ 5,350
Other Revenue from current yearUSD $ 0
Gross receipts from all sourcesUSD $ 718,028
Net assets / fund balances at end of fiscal yearUSD $ 964,262
Net assets / fund balances at beginning of fiscal yearUSD $ 564,951
Total liabilities at end of fiscal yearUSD $ 12,536
Total liabilities at beginning of fiscal yearUSD $ 196,191
Total assets at end of fiscal yearUSD $ 976,798
Total assets at beginning of fiscal yearUSD $ 761,142
Revenues less expenses for current yearUSD $ 359,329
Revenues less expenses for previous yearUSD $ 224,584
Total expenses for current yearUSD $ 357,011
Total expenses for previous yearUSD $ 414,598
Other expenses in current yearUSD $ 236,496
Other expenses in previous yearUSD $ 216,714
Total fundraising expenses in current yearUSD $ 3,341
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 120,515
Grants and similar amounts paid in previous yearUSD $ 197,884
Total revenue in current fiscal yearUSD $ 716,340
Total revenue in previous fiscal yearUSD $ 639,182
Contributions and grants from current yearUSD $ 712,663
Contributions and grants from previous yearUSD $ 630,788
Gross income from fundraising eventsUSD $ 1,688
2023-12-31
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from current yearUSD $ 0
Investment Income from prior yearUSD $ 574
Investment Income from current yearUSD $ 3,044
Other Revenue from prior yearUSD $ 0
Other Revenue from current yearUSD $ 5,350
Gross receipts from all sourcesUSD $ 640,420
Net assets / fund balances at end of fiscal yearUSD $ 564,951
Net assets / fund balances at beginning of fiscal yearUSD $ 318,789
Total liabilities at end of fiscal yearUSD $ 196,191
Total liabilities at beginning of fiscal yearUSD $ 312,257
Total assets at end of fiscal yearUSD $ 761,142
Total assets at beginning of fiscal yearUSD $ 631,046
Revenues less expenses for current yearUSD $ 224,584
Revenues less expenses for previous yearUSD $ -119,121
Total expenses for current yearUSD $ 414,598
Total expenses for previous yearUSD $ 725,710
Other expenses in current yearUSD $ 216,714
Other expenses in previous yearUSD $ 151,086
Total fundraising expenses in current yearUSD $ 9,816
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 197,884
Grants and similar amounts paid in previous yearUSD $ 574,624
Total revenue in current fiscal yearUSD $ 639,182
Total revenue in previous fiscal yearUSD $ 606,589
Contributions and grants from current yearUSD $ 630,788
Contributions and grants from previous yearUSD $ 606,015
Gross income from fundraising eventsUSD $ 1,238
Total of other revenueUSD $ 5,350
2022-12-31
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from current yearUSD $ 0
Investment Income from prior yearUSD $ 13
Investment Income from current yearUSD $ 574
Other Revenue from prior yearUSD $ 9,962
Other Revenue from current yearUSD $ 0
Gross receipts from all sourcesUSD $ 634,813
Net assets / fund balances at end of fiscal yearUSD $ 318,789
Net assets / fund balances at beginning of fiscal yearUSD $ 436,388
Total liabilities at end of fiscal yearUSD $ 312,257
Total liabilities at beginning of fiscal yearUSD $ 107,751
Total assets at end of fiscal yearUSD $ 631,046
Total assets at beginning of fiscal yearUSD $ 544,139
Revenues less expenses for current yearUSD $ -119,121
Revenues less expenses for previous yearUSD $ 190,182
Total expenses for current yearUSD $ 725,710
Total expenses for previous yearUSD $ 487,865
Other expenses in current yearUSD $ 151,086
Other expenses in previous yearUSD $ 117,374
Total fundraising expenses in current yearUSD $ 7,456
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 574,624
Grants and similar amounts paid in previous yearUSD $ 370,491
Total revenue in current fiscal yearUSD $ 606,589
Total revenue in previous fiscal yearUSD $ 678,047
Contributions and grants from current yearUSD $ 606,015
Contributions and grants from previous yearUSD $ 668,072
Gross income from fundraising eventsUSD $ 28,224
2021-12-31
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 92,500
Program Service Revenue from current yearUSD $ 0
Investment Income from prior yearUSD $ 931
Investment Income from current yearUSD $ 13
Other Revenue from prior yearUSD $ 35,989
Other Revenue from current yearUSD $ 9,962
Gross receipts from all sourcesUSD $ 692,340
Net assets / fund balances at end of fiscal yearUSD $ 436,388
Net assets / fund balances at beginning of fiscal yearUSD $ 258,624
Total liabilities at end of fiscal yearUSD $ 107,751
Total liabilities at beginning of fiscal yearUSD $ 156,414
Total assets at end of fiscal yearUSD $ 544,139
Total assets at beginning of fiscal yearUSD $ 415,038
Revenues less expenses for current yearUSD $ 190,182
Revenues less expenses for previous yearUSD $ -64,372
Total expenses for current yearUSD $ 487,865
Total expenses for previous yearUSD $ 699,706
Other expenses in current yearUSD $ 117,374
Other expenses in previous yearUSD $ 136,387
Total fundraising expenses in current yearUSD $ 5,403
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 370,491
Grants and similar amounts paid in previous yearUSD $ 563,319
Total revenue in current fiscal yearUSD $ 678,047
Total revenue in previous fiscal yearUSD $ 635,334
Contributions and grants from current yearUSD $ 668,072
Contributions and grants from previous yearUSD $ 505,914
Gross income from fundraising eventsUSD $ 14,293
Total of other revenueUSD $ 9,962
2020-12-31
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 2,500
Program Service Revenue from current yearUSD $ 92,500
Investment Income from prior yearUSD $ 4,488
Investment Income from current yearUSD $ 931
Other Revenue from prior yearUSD $ 21,154
Other Revenue from current yearUSD $ 35,989
Gross receipts from all sourcesUSD $ 636,772
Net assets / fund balances at end of fiscal yearUSD $ 258,624
Net assets / fund balances at beginning of fiscal yearUSD $ 326,184
Total liabilities at end of fiscal yearUSD $ 156,414
Total liabilities at beginning of fiscal yearUSD $ 3,280
Total assets at end of fiscal yearUSD $ 415,038
Total assets at beginning of fiscal yearUSD $ 329,464
Revenues less expenses for current yearUSD $ -64,372
Revenues less expenses for previous yearUSD $ -257,554
Total expenses for current yearUSD $ 699,706
Total expenses for previous yearUSD $ 720,098
Other expenses in current yearUSD $ 136,387
Other expenses in previous yearUSD $ 203,388
Total fundraising expenses in current yearUSD $ 4,341
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 563,319
Grants and similar amounts paid in previous yearUSD $ 516,710
Total revenue in current fiscal yearUSD $ 635,334
Total revenue in previous fiscal yearUSD $ 462,544
Contributions and grants from current yearUSD $ 505,914
Contributions and grants from previous yearUSD $ 434,402
Gross income from fundraising eventsUSD $ 1,438
Total of other revenueUSD $ 35,989
2019-12-31
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 71,000
Program Service Revenue from current yearUSD $ 2,500
Investment Income from prior yearUSD $ 5,013
Investment Income from current yearUSD $ 4,488
Other Revenue from prior yearUSD $ -2,149
Other Revenue from current yearUSD $ 21,154
Gross receipts from all sourcesUSD $ 515,811
Net assets / fund balances at end of fiscal yearUSD $ 326,184
Net assets / fund balances at beginning of fiscal yearUSD $ 559,381
Total liabilities at end of fiscal yearUSD $ 3,280
Total liabilities at beginning of fiscal yearUSD $ 90,508
Total assets at end of fiscal yearUSD $ 329,464
Total assets at beginning of fiscal yearUSD $ 649,889
Revenues less expenses for current yearUSD $ -257,554
Revenues less expenses for previous yearUSD $ -317,643
Total expenses for current yearUSD $ 720,098
Total expenses for previous yearUSD $ 807,652
Other expenses in current yearUSD $ 203,388
Other expenses in previous yearUSD $ 248,803
Total fundraising expenses in current yearUSD $ 5,807
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 516,710
Grants and similar amounts paid in previous yearUSD $ 558,849
Total revenue in current fiscal yearUSD $ 462,544
Total revenue in previous fiscal yearUSD $ 490,009
Contributions and grants from current yearUSD $ 434,402
Contributions and grants from previous yearUSD $ 416,145
Gross income from fundraising eventsUSD $ 53,267
Total of other revenueUSD $ 21,154
2018-12-31
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from current yearUSD $ 71,000
Investment Income from prior yearUSD $ 5,245
Investment Income from current yearUSD $ 5,013
Other Revenue from prior yearUSD $ -1,276
Other Revenue from current yearUSD $ -2,149
Gross receipts from all sourcesUSD $ 555,571
Net assets / fund balances at end of fiscal yearUSD $ 559,381
Net assets / fund balances at beginning of fiscal yearUSD $ 883,937
Total liabilities at end of fiscal yearUSD $ 90,508
Total liabilities at beginning of fiscal yearUSD $ 29,924
Total assets at end of fiscal yearUSD $ 649,889
Total assets at beginning of fiscal yearUSD $ 913,861
Revenues less expenses for current yearUSD $ -317,643
Revenues less expenses for previous yearUSD $ 66,568
Total expenses for current yearUSD $ 807,652
Total expenses for previous yearUSD $ 260,632
Other expenses in current yearUSD $ 248,803
Other expenses in previous yearUSD $ 45,757
Total fundraising expenses in current yearUSD $ 5,159
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 558,849
Grants and similar amounts paid in previous yearUSD $ 214,875
Total revenue in current fiscal yearUSD $ 490,009
Total revenue in previous fiscal yearUSD $ 327,200
Contributions and grants from current yearUSD $ 416,145
Contributions and grants from previous yearUSD $ 323,231
Gross income from fundraising eventsUSD $ 61,058
Total of other revenueUSD $ 806
2017-12-31
Total unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 16,858
Program Service Revenue from current yearUSD $ 0
Investment Income from prior yearUSD $ 8,784
Investment Income from current yearUSD $ 5,245
Other Revenue from current yearUSD $ -1,276
Gross receipts from all sourcesUSD $ 376,351
Net assets / fund balances at end of fiscal yearUSD $ 883,937
Net assets / fund balances at beginning of fiscal yearUSD $ 786,546
Total liabilities at end of fiscal yearUSD $ 29,924
Total liabilities at beginning of fiscal yearUSD $ 20,000
Total assets at end of fiscal yearUSD $ 913,861
Total assets at beginning of fiscal yearUSD $ 806,546
Revenues less expenses for current yearUSD $ 66,568
Revenues less expenses for previous yearUSD $ -298,937
Total expenses for current yearUSD $ 260,632
Total expenses for previous yearUSD $ 730,686
Other expenses in current yearUSD $ 45,757
Other expenses in previous yearUSD $ 68,830
Total fundraising expenses in current yearUSD $ 7,706
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 214,875
Grants and similar amounts paid in previous yearUSD $ 661,856
Total revenue in current fiscal yearUSD $ 327,200
Total revenue in previous fiscal yearUSD $ 431,749
Contributions and grants from current yearUSD $ 323,231
Contributions and grants from previous yearUSD $ 406,107
Gross income from fundraising eventsUSD $ 47,195
2016-12-31
Total unrelated business incomeUSD $ 0
Program Service Revenue from current yearUSD $ 16,858
Investment Income from prior yearUSD $ 132
Investment Income from current yearUSD $ 8,784
Other Revenue from current yearUSD $ 0
Gross receipts from all sourcesUSD $ 480,312
Net assets / fund balances at end of fiscal yearUSD $ 786,546
Net assets / fund balances at beginning of fiscal yearUSD $ 1,080,678
Total liabilities at end of fiscal yearUSD $ 20,000
Total assets at end of fiscal yearUSD $ 806,546
Total assets at beginning of fiscal yearUSD $ 1,080,678
Revenues less expenses for current yearUSD $ -298,937
Revenues less expenses for previous yearUSD $ -105,965
Total expenses for current yearUSD $ 730,686
Total expenses for previous yearUSD $ 401,032
Other expenses in current yearUSD $ 68,830
Other expenses in previous yearUSD $ 47,516
Total fundraising expenses in current yearUSD $ 5,799
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 661,856
Grants and similar amounts paid in previous yearUSD $ 353,516
Total revenue in current fiscal yearUSD $ 431,749
Total revenue in previous fiscal yearUSD $ 295,067
Contributions and grants from current yearUSD $ 406,107
Contributions and grants from previous yearUSD $ 294,935
Gross income from fundraising eventsUSD $ 47,598
Revenue from membership duesUSD $ 369
2015-12-31
Total unrelated business incomeUSD $ 0
Program Service Revenue from current yearUSD $ 0
Investment Income from prior yearUSD $ 5,925
Investment Income from current yearUSD $ 132
Other Revenue from current yearUSD $ 0
Gross receipts from all sourcesUSD $ 343,421
Net assets / fund balances at end of fiscal yearUSD $ 1,080,678
Net assets / fund balances at beginning of fiscal yearUSD $ 1,172,785
Total liabilities at end of fiscal yearUSD $ 0
Total liabilities at beginning of fiscal yearUSD $ 10,000
Total assets at end of fiscal yearUSD $ 1,080,678
Total assets at beginning of fiscal yearUSD $ 1,182,785
Revenues less expenses for current yearUSD $ -105,965
Revenues less expenses for previous yearUSD $ 503,132
Total expenses for current yearUSD $ 401,032
Total expenses for previous yearUSD $ 237,605
Other expenses in current yearUSD $ 47,516
Other expenses in previous yearUSD $ 47,605
Total fundraising expenses in current yearUSD $ 9,473
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 353,516
Grants and similar amounts paid in previous yearUSD $ 190,000
Total revenue in current fiscal yearUSD $ 295,067
Total revenue in previous fiscal yearUSD $ 740,737
Contributions and grants from current yearUSD $ 294,935
Contributions and grants from previous yearUSD $ 734,812
Gross income from fundraising eventsUSD $ 41,505
Revenue from membership duesUSD $ 20
2014-12-31
Total unrelated business incomeUSD $ 0
Program Service Revenue from current yearUSD $ 0
Investment Income from prior yearUSD $ 6,086
Investment Income from current yearUSD $ 5,925
Other Revenue from current yearUSD $ 0
Gross receipts from all sourcesUSD $ 770,225
Net assets / fund balances at end of fiscal yearUSD $ 1,172,785
Net assets / fund balances at beginning of fiscal yearUSD $ 658,056
Total liabilities at end of fiscal yearUSD $ 10,000
Total liabilities at beginning of fiscal yearUSD $ 83,290
Total assets at end of fiscal yearUSD $ 1,182,785
Total assets at beginning of fiscal yearUSD $ 741,346
Revenues less expenses for current yearUSD $ 503,132
Revenues less expenses for previous yearUSD $ 145,070
Total expenses for current yearUSD $ 237,605
Total expenses for previous yearUSD $ 151,278
Other expenses in current yearUSD $ 47,605
Other expenses in previous yearUSD $ 19,278
Total fundraising expenses in current yearUSD $ 885
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 190,000
Grants and similar amounts paid in previous yearUSD $ 132,000
Total revenue in current fiscal yearUSD $ 740,737
Total revenue in previous fiscal yearUSD $ 296,348
Contributions and grants from current yearUSD $ 734,812
Contributions and grants from previous yearUSD $ 290,262
Gross income from fundraising eventsUSD $ 25,513
Revenue from membership duesUSD $ 519

Organization Addresses

The following addresses have been detected as associated with Tax Indentification Number 270950477

USA Mailing Address
P O BOX 926
WADSWORTH
OH
44282
Date first seen: 2008-07-01
Date last seen: 2025-12-31

The following addresses have been found in other jurisdictions:

Jurisdiction:Colorado Department of State
Address:
2228 Podtburg Circle
Johnstown
800534
Jurisdiction Company ID:20181032443
Jurisdiction Registration Date:2018-01-12
Jurisdiction:Alabama Secretary of State
Address:
405 ROTHROCK RD STE 103 AKRON, OH 44321
Jurisdiction Company ID:267-746
Jurisdiction Registration Date:
Jurisdiction:Alabama Secretary of State
Address:
PO BOX 926 WADSWORTH, OH 44282
Jurisdiction Company ID:267-746
Jurisdiction Registration Date:
Jurisdiction:Alabama Secretary of State
Address:
3183 CROSSINGS DRIVE BIRMINGHAM, AL 35242
Jurisdiction Company ID:267-746
Jurisdiction Registration Date:
Jurisdiction:Alabama Secretary of State
Address:
3183 CROSSINGS DRIVE BIRMINGHAM, AL 35242
Jurisdiction Company ID:267-746
Jurisdiction Registration Date:

EIN Events

Event Date Event description
2009-12-31Form 990-N declaration of Gross Receipts Under $25,000 in tax year 2009

Nearby companies/organizations

The following companies are located in the same ZIP code areas:

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